tag:blogger.com,1999:blog-8901702009333888557.post4045582283714152253..comments2024-01-31T07:40:59.333+00:00Comments on I Have Seen The Whole Of The Internet: SyndactylyJoanne Caseyhttp://www.blogger.com/profile/04812083357123365446noreply@blogger.comBlogger96125tag:blogger.com,1999:blog-8901702009333888557.post-58362509542761659742017-07-26T06:59:44.440+01:002017-07-26T06:59:44.440+01:00Ya I'm in, I'm from south India,Ya I'm in, I'm from south India, Anonymoushttps://www.blogger.com/profile/08446143753980247959noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-85976439580045368242015-12-07T21:11:21.212+00:002015-12-07T21:11:21.212+00:00Hi there! I was never really teased for my toes as...Hi there! I was never really teased for my toes as a kid, nor was I very self-conscious about it. My mom called them my "lucky toes" when I was a kid to help me embrace this minor difference and view it in a positive light versus a negative light. Perhaps you could try something creative like that to boost your child's confidence? If it's not medically/functionally necessary, I'd avoid the surgery. You could always give your child the option to have them separated when they're older if you see that it's causing them deep psychological harm but, rest assured, it's such a minor physical defect and most people see it as a fun conversation starter more than anything else. Hope this perspective helps! :) Heather Eleanora https://www.blogger.com/profile/16001803815318283341noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-66010638746862197272015-12-07T20:45:20.732+00:002015-12-07T20:45:20.732+00:00Hi there! I was never really teased for my toes as...Hi there! I was never really teased for my toes as a kid, nor was I very self-conscious about it. My mom called them my "lucky toes" when I was a kid to help me embrace this minor difference and view it in a positive light versus a negative light. Perhaps you could try something creative like that to boost your child's confidence? If it's not medically/functionally necessary, I'd avoid the surgery. You could always give your child the option to have them separated when they're older if you see that it's causing them deep psychological harm but, rest assured, it's such a minor physical defect and most people see it as a fun conversation starter more than anything else. Hope this perspective helps! :) Heather Eleanora https://www.blogger.com/profile/16001803815318283341noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-77782174472369105962015-12-07T20:18:06.590+00:002015-12-07T20:18:06.590+00:00Hi there, maybe you could contact some of the peop...Hi there, maybe you could contact some of the people who have commented here for a bit of adviceJoanne Caseyhttps://www.blogger.com/profile/04812083357123365446noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-34635837831792188942015-12-07T04:00:31.784+00:002015-12-07T04:00:31.784+00:00I have a 9 month old son who has toe webbing. I am...I have a 9 month old son who has toe webbing. I am wanting to know if anyone would be willing to share their experience as a child with toe webbing. I am hesitant for him to have surgery simply for a cosmetic purposes. <br />Thank youAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-1179810830622353032015-03-04T19:26:06.692+00:002015-03-04T19:26:06.692+00:00This comment has been removed by the author.Heather Eleanora https://www.blogger.com/profile/16001803815318283341noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-64252655983173235132014-07-15T12:50:07.780+01:002014-07-15T12:50:07.780+01:00Dude. i have this webbed toe thing as well. 2nd an...Dude. i have this webbed toe thing as well. 2nd and 3rd toes all the way up. i really don't know of anyone else carrying these... except one other guy i met has them half way up. my uncle is a tattoo artist and thought about tatt toeing this on me since i was little. i am now 21 and am considering this of some sort. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-41369737443783591632014-03-29T18:05:34.479+00:002014-03-29T18:05:34.479+00:00I have it too. Would really like to share experien...I have it too. Would really like to share experiences about it..BeGoodhttps://www.blogger.com/profile/13225263250386677198noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-38215603135826071642013-08-21T10:22:45.488+01:002013-08-21T10:22:45.488+01:00[Like][Like]Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-20911719921853722002013-03-21T17:08:04.455+00:002013-03-21T17:08:04.455+00:00Hello,
I have the same toes webbed and I've b...Hello, <br />I have the same toes webbed and I've been wanting a tattoo near them. However, I'm too nervous about the pain because I've never gotten a tattoo before. How bad was the pain in getting your tattoo on your toes, if you don't mind me asking?<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-25853680902146901022013-03-11T11:08:09.370+00:002013-03-11T11:08:09.370+00:00Judging from the amount of replies on my tiny blog...Judging from the amount of replies on my tiny blog...there must be 1000's of folks with this around the world.Joanne Caseyhttps://www.blogger.com/profile/04812083357123365446noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-65789379402628840152013-03-11T07:01:22.674+00:002013-03-11T07:01:22.674+00:00This same thing runs in my dads family. I was born...This same thing runs in my dads family. I was born with this defect and I must say it makes me feel worlds better knowing that there are other people out there with this same affliction living normal lives.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-59985963041119287682013-01-06T18:46:15.231+00:002013-01-06T18:46:15.231+00:00That's fantastic, WoodyThat's fantastic, WoodyJoanne Caseyhttps://www.blogger.com/profile/04812083357123365446noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-90316702419996126692013-01-05T22:22:52.576+00:002013-01-05T22:22:52.576+00:00Joanne,
I am in the process of working with Childr...Joanne,<br />I am in the process of working with Children's Hospital and Washington University and in collaboration with both I have organized the National Foundation for Syndactyly Research, Support, and Eduction. You can follow the organization at www.nfsus.org. You can help by spreading the word about the organization. <br />WoodyAnonymoushttps://www.blogger.com/profile/06297192520037987176noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-76668626588995672482012-08-25T10:08:21.705+01:002012-08-25T10:08:21.705+01:00Awww glad to hear his operation was a success!
Awww glad to hear his operation was a success!<br />Joanne Caseyhttps://www.blogger.com/profile/04812083357123365446noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-82408885324758228992012-08-25T07:11:39.992+01:002012-08-25T07:11:39.992+01:00My 7 1/2 month old received surgery day before yes...My 7 1/2 month old received surgery day before yesterday seperating his middle and ring finger on both hands. The left hand was fused fully and the right was just partial. I had grown use to them being together but I knew it would be better for him in the future. He also has his toes the same way and they are all the way up, but he does have both bones and toe nails and I love his little toes and do not wish them to be sepereate. Seeing that there are more people that love theirs is awesome. Proud to be a mom of a syndactyly :)Anonymoushttps://www.blogger.com/profile/15117874529056524253noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-90549655904779070402012-08-24T23:50:32.764+01:002012-08-24T23:50:32.764+01:00Taylor, I'll post them if you like :)Taylor, I'll post them if you like :)Joanne Caseyhttps://www.blogger.com/profile/04812083357123365446noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-65884649710690639012012-08-24T22:54:16.872+01:002012-08-24T22:54:16.872+01:00I have the same webbed toes on both feet.I have the same webbed toes on both feet.Taylorhttps://www.blogger.com/profile/05609168319353679069noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-51372284354608267782012-08-24T22:52:17.491+01:002012-08-24T22:52:17.491+01:00I have the same webbed toes on both feet.I have the same webbed toes on both feet.Taylorhttps://www.blogger.com/profile/05609168319353679069noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-12610642367276858542012-08-17T22:52:56.814+01:002012-08-17T22:52:56.814+01:00Here's an email I received...
My name is Seth...Here's an email I received...<br /><br />My name is Seth Helgeson and I came across your blog while seeking out others with 2nd & 3rd toe Syndactyly. I was reading your comments and noticed several people stating that “this runs in my family” and wanted to let you know what this actually means. I have a daughter, Scarlett age 6, who has the same “Bunny Toes” and is also affected by a rare genetic condition called Smith-Lemli-Opitz Syndrome or SLOS for short. Having the “Bunny Toes” does not mean you are syndromic, however, it does indicate that you are a carrier of the Smith-Lemli-Opitz Syndrome.<br /><br />What is Smith-Lemli-Opitz syndrome (SLOS)?<br /><br />SLOS is a metabolic disorder caused by a mutation in the DHCR7 (7-dehydrocholesterol reductase) gene on chromosome 11. This gene codes for an enzyme that is involved in the production of cholesterol. People who have SLOS are unable to make enough cholesterol to support normal growth and development. Cholesterol is an essential component of the cell membrane and tissues of the brain. A person who can't make enough cholesterol will therefore experience poor growth, developmental delays, and mental retardation. People with this disorder may also have a range of physical malformations (such as extra fingers or toes) and problems with internal organs (such as the heart or kidney).<br /><br />How do people get SLOS?<br /><br />SLOS is inherited in an autosomal recessive pattern. Because it is recessive, a child will not have the symptoms of the disorder unless both parents pass on a defective copy of the DHCR7 gene. This can only happen if both parents are carriers. A carrier is a person who has one good copy and one mutated copy of the DHCR7 gene, but does not experience any symptoms of the disorder. If both parents are carriers, each of their children will have a 25 percent chance of inheriting the disorder.<br /><br />I am a board member of the Smith-Lemli-Opitz Foundation and as such I have attached an image that is adored by many on our Facebook wall. We are also trying to create awareness of this condition as 1 in 27 people are carriers of this genetic mutation and 1 in every 20,000 births is affected by SLOS, however, only 1 in 90,000 SLOS births survive,<br /><br />The following is the 1st Annual Scarlett Helgeson Walk where we are raising funds for the foundation so we can get this syndrome to be a part of the newborn screening programs nationwide.<br /><br />Any support you can provide by means of your blog or even sharing the attached image with your followers and mentioning our fundraising page would be greatly appreciated.<br /><br />http://www.smithlemliopitz.org/<br />http://igg.me/p/175965?a=805112Joanne Caseyhttps://www.blogger.com/profile/04812083357123365446noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-43368607672787475022012-08-16T21:47:34.164+01:002012-08-16T21:47:34.164+01:00email me at greenmeats@gmail.com, I'll post it...email me at greenmeats@gmail.com, I'll post it with whatever link you wantJoanne Caseyhttps://www.blogger.com/profile/04812083357123365446noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-30112464745860873032012-08-16T21:36:53.855+01:002012-08-16T21:36:53.855+01:00I have webbed toes. How do I post a pic for you?I have webbed toes. How do I post a pic for you?moondoghttps://www.blogger.com/profile/09576741121991369455noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-62688192450296719652012-08-16T21:36:23.747+01:002012-08-16T21:36:23.747+01:00I have webbed toes. How do I post a pic for you?I have webbed toes. How do I post a pic for you?moondoghttps://www.blogger.com/profile/09576741121991369455noreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-81819312979406531872012-07-20T23:29:49.870+01:002012-07-20T23:29:49.870+01:00Great to see this on show ...I am 46 but had my fi...Great to see this on show ...I am 46 but had my fingers cut apart at age 3 - both hands had 3rd and 4th fingers , left hand up to nail and right hand 90% up. Also my 2nd and 3rd toes are joined about 20% up. My daughter has toes joined about 2/3 up similar to the blog photo. When i was very young my brother used to tell me i had stuck them with superglue. When people notice my scars ( i am told modern day procedures leave almost no scar) , I generally make some humour from it such as " i had to get it done as i was making a lot of mistakes on the piano" or " i auditioned for Spock but I kept failing on the Live long and Prosper hand sign" - anyway i need new material LOLAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8901702009333888557.post-39030125965174492612012-05-02T23:38:05.394+01:002012-05-02T23:38:05.394+01:00I have a webbed toe on my right foot! So many of u...I have a webbed toe on my right foot! So many of us...Anonymousnoreply@blogger.com